Pearl Jam Lead Singer and Co-Founder of the EB Research Partnership Eddie Vedder, along side his wife Jill put together a virtual concert this past wednesday for EB Research. During the event, Vedder released Two brand new songs “Matter of Time” and “Say Hi”
EB is a life-threatening genetic disorder that affects approximately 500,000 people worldwide. Called “Butterfly Children” because their skin is as fragile as the wings of a butterfly, children with EB face severe pain, open external and internal wounds, and a grueling daily bandaging process. There is currently no treatment or cure for EB, however EBRP’s innovative Venture Philanthropy model is helping to fast-track not only a cure for EB, but therapies that could affect thousands of other rare diseases.
Read More: Eddie Vedder Unveils Two New Songs at EB Research Benefit